Sunday, May 1, 2011
Elliot Adler: A Young American Hero
Elliot is a young man that has learned to live with CMT (Charcot Marie Tooth) disease, a neuromuscular disorder. He is asking for a brighter future for himself and others that suffer from CMT.
CMT is considered to be the most commonly inherited form of peripheral neuropathy affecting approximately one in 2,500 adults. CMT is diagnosed by clinical features of muscle atrophy, age of onset, electromyography (EMG), nerve biopsy and through genetic testing. Charcot-Marie-Tooth disease (CMT) is a hereditary motor-sensory neuropathy (HMSN). HMSNs are a group of progressive neurological disorders that affect the motor and sensory units of the peripheral nervous system. CMT causes weakness because the nerve signals are impaired (demyelinated) before they reach the muscle. Over time this causes atrophy (a loss of muscle strength) in various areas of the body such as the feet, legs, hands, and diaphragm. Although considered a "family disease", people are commonly affected differently. To date there is no known cure or treatment to arrest levels or rates of progression.
Elliot's made a YouTube video called Elliot's Feet.
What CMT is lacking - aside from a good name - is a PR campaign that builds a solid support base....and let's face it, research money is spent on diseases with large communities of support.
So Elliot wants to get the word out. He wants Charcot-Marie-Tooth to be just as familiar as the word "Alzheimer's". He wants some of that research money to flow CMT's way.
For more on the Hereditary Neuropathy Foundation.
Or to connect directly with Elliot: firstname.lastname@example.org
Share the video - help build a huge CMT community of supporters.